Leiden University Student Repository

Zwezereijn, Marsha (2024)

‘Vooruit, achteruit of stabiliteit: leven in een wereld van verschil’: Ondersteuningsbehoefte en kwaliteit van bestaan van mensen met een verstandelijke beperking en een (zeer) intensieve zorgvraag

Master thesis | Education and Child Studies (MSc)

Aim: In recent years, a lot of attention has been paid to improving the care and support of people with intellectual disabilities. A consequence is that many studies have been conducted into the effects of support on the well-being of people with an intellectual disability. But research into groups that have improved, deteriorated or remained the same in terms of quality of life in combination with support needs was lacking. Therefore, the purpose of this study is to investigate the characteristics of the forward, backward and equal groups and to discover whether the groups differ in support needs. This is relevant because it can improve care and support. Method: Over a period of 4 years, 234 participants with an intellectual disability between the ages of 17 and 71 took part. To measure the quality of life of people with an intellectual disability, the San Martin Scale was used, completed by a supervisor. The support needs were identified with the Contextual Interview, this was...Show moreAim: In recent years, a lot of attention has been paid to improving the care and support of people with intellectual disabilities. A consequence is that many studies have been conducted into the effects of support on the well-being of people with an intellectual disability. But research into groups that have improved, deteriorated or remained the same in terms of quality of life in combination with support needs was lacking. Therefore, the purpose of this study is to investigate the characteristics of the forward, backward and equal groups and to discover whether the groups differ in support needs. This is relevant because it can improve care and support. Method: Over a period of 4 years, 234 participants with an intellectual disability between the ages of 17 and 71 took part. To measure the quality of life of people with an intellectual disability, the San Martin Scale was used, completed by a supervisor. The support needs were identified with the Contextual Interview, this was done with the help of family, psychologist and supervisors. Both measuring instruments were administered three times in 4 years. Results: the results show that the quality of life differs over time. The forward, backward and equal groups differ in the domains: housing, communication, attachment, self-determination and physical needs. This research suggests that housing, communication, attachment and (physical) needs influence the progression of quality of life. Conclusion: the findings show that there are differences between the forward, backward and equal groups on domains of support needs. This research suggests that good support per domain leads to improvement or stabilization of the quality of life of people with an intellectual disability.Show less

verstandelijke beperking

kwaliteit van bestaan

ondersteuningsbehoefte

Author

Zwezereijn, Marsha

Faculty

Faculty of Social & Behavioural Sciences

Specialisation

Orthopedagogiek

Supervisors

Dijkxhoorn, Y.M.

ECTS Credits

20

Language

nl